Aeltri

Years ago before getting an EDS diagnosis I tried to address some gastrointestinal issues by changing my diet, I cut out dairy and gluten and minimized meat. I continued to suffer and even got worse, so I doubled down and became a very strict vegan and got even sicker. It got to the point that I was having hives, bloated moon-face, constant gastrointestinal discomfort, I lost so much weight I looked emaciated and had body pain and fatigue. At the time, an allergist diagnosed me with being so reactive to nickel that my body was having significant responses to high-nickel foods (soy, nuts, beans, oats, dark leafy greens – basically everything I had unintentionally increased in my diet as I cut out animal products and gluten). Post EDS diagnosis I am starting to realize many of these symptoms may be part of the MAS symptoms EDSers often have. Regardless, for me eating a low-nickel diet (which has meant eating meat and animal products) has VASTLY improved my quality of life. I know I will pay an almost immediate price for consuming some foods generally considered “healthy” for most people like kale or soy, and that other foods like beans or oats will add up throughout a day/week and cause symptoms if I over do it.